Podcasts
I’ve hosted several podcasts over the last 15+ years. My first podcast was “No Free Rides,” which highlighted SCI life topics. I now host a podcast for SPINALpedia.com called Life After Paralysis which follows the same theme. Please check it out on iTunes here
Also, please check out my previous podcast, SCI Life Uncovered, here
4 Comments
Angelina
Thankfully I am not fully paralyzed, but I would have been without immediate surgical intervention. I have Cauda Equina Syndrome, a rare SIC that has left me disabled. I am looking for a podcast willing to let me tell my story and the issues other patients have experienced just getting an MRI to diagnosis it. Time is of the essence, so those people are losing valuable function. 98% of physicians have needed me to educate them on the condition and my own family believed I was exaggerating until the saw me fall on a nearly weekly basis. I want to draw attention to its existence, the red flag systems, the failure on the part of the medical field, and what it’s actually like living with it. It’s devastating quite frankly. I cope okay, but I am struggling. My ultimate goal is to help others with disabilities. I have loving support, but that support is still invalidating since they think I’m being dramatic. I’d love to come on your pod and chat. Thank you!!
Tiff
Hi Angelina! I would love to feature you 🙂 Whats your email?
Tim Shields
I have abother who is a Quad in La Grange Il I live in Idaho we talk often he is 71 been in a chair for over 40 yrs and he is having problems operating a computer and I have been looking at Mouthpad. Is there any folks you know who have used these devises? Can you give me the pros and cons. I would like to buy him one but just checking if they work? Thanks Tim Shields Semper Fi
Tiff
Hi Tim! Your best bet would be to talk to the people at Mouth Pad to see if your brother can trial a demo.